Race ‘n’ Roll 5K and 1M Fun Run 2017

The CFMD race planning committee is back at work again to host Race ‘n’ Roll 5K and 1M Fun Run 2017 on August 12, 2017.  This charity race will take place the morning of the Filipino Festival at the fairgrounds of Our Lady of Lourdes Church.  Come join us for a morning of fun, prizes, food and supporting those living with muscular dystrophy in Virginia.

If you have participated in our race event in the past, please use code RETURNING17 for $5 off your registration price.  CFMD will absorb the processing fees!

Proceeds from the race will go towards sponsoring a child to attend MDA summer camp in 2018 and awarding grants to individuals with muscular dystrophy who are in need of financial assistance to pay for modifications, equipment or services to increase quality of life.

New to the race this year:
Top 3 male and female 5K finishers will receive a medal and a cash prize (VISA gift certificate)!

All 1M and 5K racers will be entered for a chance to win a door prize from our local sponsors.

The 1M Family Fun Run is open to everyone (children AND adults)

First event will start at 8AM instead of 9AM

All racers and volunteers will still receive a complimentary race t-shirt, festival voucher to be used at the Filipino Festival after the race, race swag bag, access to the food recovery tent, and of course, 2 Filipino egg rolls (lumpia) at the finish line!!

For more information, please see our event page at www.coloradofmd.org/race.

Registration prices will increase on race day.  We look forward to seeing you at the race!!!

2017 Grant Recipient- The Eastham Family

CFMD is proud to announce our May 2017 grant recipient, the Eastham Family!  Nicole Eastham applied for the CFMD grant to purchase supplies to build a deck with a ramp for her two sons, James and William, who both have Duchenne muscular dystrophy.  With the deck complete, the whole family is now able to enjoy time outside together and the boys also have a second entrance and exit to and from the house.

CFMD awards grants twice a year in May and October.  Grant applicants must be a Virginia resident with a diagnosed form of muscular dystrophy.  Grant may be used towards anything that would increase their quality of life.  For more information about applying for the CFMD grant, visit http://www.coloradofmd.org/grants/. For news about our past grant recipients, visit http://www.coloradofmd.org/news/.

MDA Walk

On May 20, 2017, CFMD participated in the Richmond Muscle Walk to share information about our nonprofit and the grant that we offer. We met several families that did not know about our grant and were interested in applying.   It was a pleasure to see our first and third grant recipients Ben Bamgarner and his family and Keilondi Johnson at the event. In 2015, CFMD presented Ben an adaptive tricycle by Rifton for his 5th birthday!  In 2016, Keilondi Johnson was awarded a grant to help pay for the purchase of the Go Wing device that helps her move her arms.

Bake Sale

On May 7, 2017, CFMD hosted its fifth annual bake sale at St. Edward’s Catholic Church to raise funds for muscular dystrophy.  The event was a huge success raising $865!

CFMD was fortunate to have talented supporters who donated many hand made breads, desserts and Filipino lunch items for us to sell.  A large thank you to the bake sale volunteers and those that purchased food for a great cause. Since 2014, CFMD has made a total of $3,835.42 from hosting bake sales.

2016 Grant Recipients

Living with muscular dystrophy can be costly. Individuals may need various types of equipment, therapies, and modifications to maximize their independence. CFMD offers grants (up to $1,000) twice a year to Virginia residents in need of financial assistance.

In February, CFMD awarded Steve Connelly $1,000 towards the copayment of his new push assist chair.  Diagnosed with Friedreich’s Ataxia, Steve needed to replace his old, manual wheelchair for a lightweight wheelchair that would be easier for him to propel. Steve is now able to maneuver his chair without fatigue, and his family is able to lift and transfer his chair into the car for traveling.

In May, CFMD awarded Keilondi Johnson $1,000 towards the purchase of a new device called the Go Wing Arm Support.  Over the years, muscular dystrophy weakened her muscles, making it difficult to lift her arms to do daily tasks.  The Go Wing Arm support is a device that could be mounted to Keilondi’s wheelchair to provide power assistance, allowing her to raise her arms to eat, drink, reach and grab objects.  Currently, this device is not covered by insurance.

In October, CFMD awarded two $1,000 grants to Laura Halvorson and the Gluck Family.  Diagnosed with Limbgirdle Muscular Dystrophy, Laura needed a shower chair that would enable her caregiver to safely transfer Laura from her wheelchair to the bathtub and provide enough posture support to allow Laura to comfortably sit in the chair. Bathroom equipment such as a shower chair is not covered by medical insurance.

The Gluck family applied for the CFMD grant to help with the purchase and installation of a ceiling lift for their 8 year-old son, John.  John was diagnosed with Ulrich Congenital Muscular Dystrophy, which limits John’s strength and ability to move.  This lift will aid his parents in easily transferring John to his bed, wheelchair, or bathroom along a customized track mounted to the ceiling.

CFMD is currently accepting applications for this year’s grants. Please visit http://www.coloradofmd.org/grants/ for more information.

2016 Race ‘N’ Roll 5K and Fun Run

On August 13, 2016, CFMD hosted its third annual Race ‘N’ Roll 5K and Fun Run to raise money to fund more grants and sponsor children for MDA summer camp.  Through sponsorship support, race participants, and fundraising donations, we raised close to $7,000 in gross proceeds.

On a warm summer day, participants and spectators came out to support our cause and enjoy the Filipino Festival after the race.  Congratulations to the race participants and award recipients!  Please visit the following website for race results and pictures: http://www.coloradofmd.org/race/resultsphotos/

This year’s top fundraising team award went to the Virginia Beach team!  To raise funds, this group got creative and held parties at their homes, where they invited their friends to enjoy games and dessert.

CFMD would like to thank our race planning team and volunteers who donated their time and talents to host another successful event.

A special thank you to the following business sponsors who contributed funds, prizes, ad space, and food to support our charity event:

Silver Sponsors: Filipino Festival, Aloha Orthodontics, Fleet Feet Sports, Lucky Road, Papa John’s Pizza, Richmond Family Magazine, Yelp

Prize Sponsors:  Goddess Garden Organics, Sky Zone Trampoline Park, Duck Donuts, Escape Room RVA, Richmond Kickers, GForce Karts, Cooper’s Hawk Winery & Restaurant, The Melting Pot, REI, Washington Nationals, Tracey’s Hair Obsession, Gourmet Gift Baskets.com, Carmike Ovation Cinemas, Windy Hill Sports Complex, Road ID, Bring Fido, Richmond Symphony, Richmond Flying Squirrels, Segway of Richmond, RVA Trolley, Growlers to Go, Cinebistro

Recovery Tent Sponsors:  Filipino Festival, CVS Pharmacy, Zone Perfect Nutrition Bars, Old Orchard, Panera Bread, The Fresh Market

Summer Fun

For many children living with muscular dystrophy, attending MDA summer camp is the highlight of their summer.  The Muscular Dystrophy Association (MDA) hosts a week long summer camp in June each year in Wakefield, Virginia, where children can experience many activities like horseback riding, swimming, canoeing, arts and crafts, and adaptive sports.  Each child is paired with a trained volunteer who assists the child during the week.

It currently costs $2,000 to send one child to camp.  Children are invited to attend this camp free of charge. CFMD has sponsored at least one child to attend camp each year since 2012.

To learn more about MDA summer camp and the impact it has had on these children, watch the news story here.
The story can also be viewed at http://wtvr.com/2014/06/19/mda-camp-waverly/

Dine for Muscular Dystrophy

On November 9, 2016, CFMD hosted Dine for Muscular Dystrophy at Mosaic Restaurant in Richmond. Thirteen percent of the night’s revenue was donated to support CFMD. Guests filled the restaurant and enjoyed a delicious dinner to support a worthy cause. CFMD raised $607 in gross proceeds!