Aileen’s sister, and treasurer of Colorado Fund for Muscular Dystrophy, tells her story in Self Advocacy+Resiliency+Problem Solving = Successful Tracheostomy Transition. Read her article at on the Breathe with MD, Inc. website.
Not even rain could dampen the mood of Race ‘N’ Roll 2017. Racers and volunteers were treated to fresh egg rolls, fruit, bagels, and a festival voucher to use at the Filipino festival in the afternoon. Prizes were awarded to the overall top male and female racers and top 3 male and female racers in different age categories. Congratulations to all the participants and top racers who helped us raise funds to increase the quality of life for those living with muscular dystrophy. CFMD raised almost $6,000 in gross proceeds.
CFMD would like to thank all of the volunteers, race planning committee and sponsors who helped to make this event a success!
Platinum Sponsor: Filipino Festival
Gold Sponsor: Papa John’s Pizza, Richmond Family Magazine, Yelp, Lucky Road
Silver Sponsor: Aloha Orthodontics
Bronze Sponsors: Tracey’s Hair Obsession, Science Museum of Virginia, The Melting Pot, Muse Paintbar, Growlers to Go, Breakoutgames, Panera Bread, Filipino American Association of Central Virginia (FAACV), Carytown Burgers & Fries
Family Sponsors: Christopher and Allison Didden, Glenn and Sandra Dodd, Patrick and Zeni Resa, Chris and Laura West, Resty and Melissa Rebuquiao, Brett and Lori Dodd
Top fundraising group: VA beach group
CFMD hosted its second Mosaic Night Gives Back on 11/8/17 in honor of Aileen Colorado’s birthday. The restaurant was filled with sounds of friends and family laughing and sharing a delicious meal together. Two of Aileen’s favorite things! Mosaic donated 13% of its proceeds to CFMD. Thank you to everyone who came out to support our cause. It was wonderful to see so many familiar faces!
April 21, 2108- MDA Muscle Walk
May 6, 2018- Brunch Bake Sale- St. Edwards the Confessor Church
Every summer, kids with muscular dystrophy are invited to participate in MDA summer camp in Wakefield, Virginia. For one week, kids have the opportunity to experience summer time activities like arts and crafts, canoeing, horse back riding, adaptive sports, and more. It currently costs $2000 for each child to attend camp. Last year, CFMD sponsored one child. This year, CFMD donated $4,000 to sponsor 2 children to give them the best summer experience!
The CFMD race planning committee is back at work again to host Race ‘n’ Roll 5K and 1M Fun Run 2017 on August 12, 2017. This charity race will take place the morning of the Filipino Festival at the fairgrounds of Our Lady of Lourdes Church. Come join us for a morning of fun, prizes, food and supporting those living with muscular dystrophy in Virginia.
If you have participated in our race event in the past, please use code RETURNING17 for $5 off your registration price. CFMD will absorb the processing fees!
Proceeds from the race will go towards sponsoring a child to attend MDA summer camp in 2018 and awarding grants to individuals with muscular dystrophy who are in need of financial assistance to pay for modifications, equipment or services to increase quality of life.
New to the race this year:
Top 3 male and female 5K finishers will receive a medal and a cash prize (VISA gift certificate)!
All 1M and 5K racers will be entered for a chance to win a door prize from our local sponsors.
The 1M Family Fun Run is open to everyone (children AND adults)
First event will start at 8AM instead of 9AM
All racers and volunteers will still receive a complimentary race t-shirt, festival voucher to be used at the Filipino Festival after the race, race swag bag, access to the food recovery tent, and of course, 2 Filipino egg rolls (lumpia) at the finish line!!
For more information, please see our event page at www.coloradofmd.org/race.
Registration prices will increase on race day. We look forward to seeing you at the race!!!
CFMD is proud to announce our May 2017 grant recipient, the Eastham Family! Nicole Eastham applied for the CFMD grant to purchase supplies to build a deck with a ramp for her two sons, James and William, who both have Duchenne muscular dystrophy. With the deck complete, the whole family is now able to enjoy time outside together and the boys also have a second entrance and exit to and from the house.
CFMD awards grants twice a year in May and October. Grant applicants must be a Virginia resident with a diagnosed form of muscular dystrophy. Grant may be used towards anything that would increase their quality of life. For more information about applying for the CFMD grant, visit http://www.coloradofmd.org/grants/. For news about our past grant recipients, visit http://www.coloradofmd.org/news/.
On May 20, 2017, CFMD participated in the Richmond Muscle Walk to share information about our nonprofit and the grant that we offer. We met several families that did not know about our grant and were interested in applying. It was a pleasure to see our first and third grant recipients Ben Bamgarner and his family and Keilondi Johnson at the event. In 2015, CFMD presented Ben an adaptive tricycle by Rifton for his 5th birthday! In 2016, Keilondi Johnson was awarded a grant to help pay for the purchase of the Go Wing device that helps her move her arms.
On May 7, 2017, CFMD hosted its fifth annual bake sale at St. Edward’s Catholic Church to raise funds for muscular dystrophy. The event was a huge success raising $865!
CFMD was fortunate to have talented supporters who donated many hand made breads, desserts and Filipino lunch items for us to sell. A large thank you to the bake sale volunteers and those that purchased food for a great cause. Since 2014, CFMD has made a total of $3,835.42 from hosting bake sales.
Living with muscular dystrophy can be costly. Individuals may need various types of equipment, therapies, and modifications to maximize their independence. CFMD offers grants (up to $1,000) twice a year to Virginia residents in need of financial assistance.
In February, CFMD awarded Steve Connelly $1,000 towards the copayment of his new push assist chair. Diagnosed with Friedreich’s Ataxia, Steve needed to replace his old, manual wheelchair for a lightweight wheelchair that would be easier for him to propel. Steve is now able to maneuver his chair without fatigue, and his family is able to lift and transfer his chair into the car for traveling.
In May, CFMD awarded Keilondi Johnson $1,000 towards the purchase of a new device called the Go Wing Arm Support. Over the years, muscular dystrophy weakened her muscles, making it difficult to lift her arms to do daily tasks. The Go Wing Arm support is a device that could be mounted to Keilondi’s wheelchair to provide power assistance, allowing her to raise her arms to eat, drink, reach and grab objects. Currently, this device is not covered by insurance.
In October, CFMD awarded two $1,000 grants to Laura Halvorson and the Gluck Family. Diagnosed with Limbgirdle Muscular Dystrophy, Laura needed a shower chair that would enable her caregiver to safely transfer Laura from her wheelchair to the bathtub and provide enough posture support to allow Laura to comfortably sit in the chair. Bathroom equipment such as a shower chair is not covered by medical insurance.
The Gluck family applied for the CFMD grant to help with the purchase and installation of a ceiling lift for their 8 year-old son, John. John was diagnosed with Ulrich Congenital Muscular Dystrophy, which limits John’s strength and ability to move. This lift will aid his parents in easily transferring John to his bed, wheelchair, or bathroom along a customized track mounted to the ceiling.
CFMD is currently accepting applications for this year’s grants. Please visit http://www.coloradofmd.org/grants/ for more information.