Articles for June 2017

2016 Grant Recipients

Living with muscular dystrophy can be costly. Individuals may need various types of equipment, therapies, and modifications to maximize their independence. CFMD offers grants (up to $1,000) twice a year to Virginia residents in need of financial assistance.

In February, CFMD awarded Steve Connelly $1,000 towards the copayment of his new push assist chair.  Diagnosed with Friedreich’s Ataxia, Steve needed to replace his old, manual wheelchair for a lightweight wheelchair that would be easier for him to propel. Steve is now able to maneuver his chair without fatigue, and his family is able to lift and transfer his chair into the car for traveling.

In May, CFMD awarded Keilondi Johnson $1,000 towards the purchase of a new device called the Go Wing Arm Support.  Over the years, muscular dystrophy weakened her muscles, making it difficult to lift her arms to do daily tasks.  The Go Wing Arm support is a device that could be mounted to Keilondi’s wheelchair to provide power assistance, allowing her to raise her arms to eat, drink, reach and grab objects.  Currently, this device is not covered by insurance.

In October, CFMD awarded two $1,000 grants to Laura Halvorson and the Gluck Family.  Diagnosed with Limbgirdle Muscular Dystrophy, Laura needed a shower chair that would enable her caregiver to safely transfer Laura from her wheelchair to the bathtub and provide enough posture support to allow Laura to comfortably sit in the chair. Bathroom equipment such as a shower chair is not covered by medical insurance.

The Gluck family applied for the CFMD grant to help with the purchase and installation of a ceiling lift for their 8 year-old son, John.  John was diagnosed with Ulrich Congenital Muscular Dystrophy, which limits John’s strength and ability to move.  This lift will aid his parents in easily transferring John to his bed, wheelchair, or bathroom along a customized track mounted to the ceiling.

CFMD is currently accepting applications for this year’s grants. Please visit for more information.

2016 Race ‘N’ Roll 5K and Fun Run

On August 13, 2016, CFMD hosted its third annual Race ‘N’ Roll 5K and Fun Run to raise money to fund more grants and sponsor children for MDA summer camp.  Through sponsorship support, race participants, and fundraising donations, we raised close to $7,000 in gross proceeds.

On a warm summer day, participants and spectators came out to support our cause and enjoy the Filipino Festival after the race.  Congratulations to the race participants and award recipients!  Please visit the following website for race results and pictures:

This year’s top fundraising team award went to the Virginia Beach team!  To raise funds, this group got creative and held parties at their homes, where they invited their friends to enjoy games and dessert.

CFMD would like to thank our race planning team and volunteers who donated their time and talents to host another successful event.

A special thank you to the following business sponsors who contributed funds, prizes, ad space, and food to support our charity event:

Silver Sponsors: Filipino Festival, Aloha Orthodontics, Fleet Feet Sports, Lucky Road, Papa John’s Pizza, Richmond Family Magazine, Yelp

Prize Sponsors:  Goddess Garden Organics, Sky Zone Trampoline Park, Duck Donuts, Escape Room RVA, Richmond Kickers, GForce Karts, Cooper’s Hawk Winery & Restaurant, The Melting Pot, REI, Washington Nationals, Tracey’s Hair Obsession, Gourmet Gift, Carmike Ovation Cinemas, Windy Hill Sports Complex, Road ID, Bring Fido, Richmond Symphony, Richmond Flying Squirrels, Segway of Richmond, RVA Trolley, Growlers to Go, Cinebistro

Recovery Tent Sponsors:  Filipino Festival, CVS Pharmacy, Zone Perfect Nutrition Bars, Old Orchard, Panera Bread, The Fresh Market

Summer Fun

For many children living with muscular dystrophy, attending MDA summer camp is the highlight of their summer.  The Muscular Dystrophy Association (MDA) hosts a week long summer camp in June each year in Wakefield, Virginia, where children can experience many activities like horseback riding, swimming, canoeing, arts and crafts, and adaptive sports.  Each child is paired with a trained volunteer who assists the child during the week.

It currently costs $2,000 to send one child to camp.  Children are invited to attend this camp free of charge. CFMD has sponsored at least one child to attend camp each year since 2012.

To learn more about MDA summer camp and the impact it has had on these children, watch the news story here.
The story can also be viewed at

Dine for Muscular Dystrophy

On November 9, 2016, CFMD hosted Dine for Muscular Dystrophy at Mosaic Restaurant in Richmond. Thirteen percent of the night’s revenue was donated to support CFMD. Guests filled the restaurant and enjoyed a delicious dinner to support a worthy cause. CFMD raised $607 in gross proceeds!